Heatwave, it’s not me, it’s Lupus.

My body is no longer designed to cope in high temperatures. I’m basically a real life vampire. I know what you’re thinking “you coped Turkey”, which is semi true, because some days I didn’t. The difference is, in Turkey I spent 90% of my time submerged in cold water.

At first, like everyone, I was overjoyed to see the sun. We have a roofed decking area with comfortable garden furniture, besides my bed, it’s my favourite place to sit. I grabbed my book and sat there for 20 minutes before retreating back inside declaring “it burns”. I told you, I’m a real life vampire. Except when I got up, my vision went blurry and I was dizzy. Which, in fairness, is a regular symptom of mine, it’s just happens more in the sun.

Because I have a stubborn streak, everyday I’ve been giving sitting outside ‘another’ go. Each day ends the same: I notice rashes, it burns and itches my skin, I get dizzy and blurry vision and try to get to the sofa without falling. The only time I can sit outside in the heatwave somewhat comfortably is after 5pm or if I’m somewhere in the shade.

I would be lucky if rashes, dizziness and blurry vision were my only symptoms to show during the heatwave. My fatigue levels have shot up, I’m getting regular headaches, I ache from head to toe and have joint pain. The joint pain is particularly vile in my elbows and knees, my most commonly affected joints. My hands are starting to feel stiff.

Yesterday I went shopping. A big mistake even though I was in shops for the majority of the time. I walked around with legs that felt weak, like they were struggling to hold me up. My joint pain was bad in my knees and my headache was bad, it felt as if I had been hit in the back of the head with a pan.

Since the heatwave started, every morning has been rough. I wake up feeling like a lead weight and I have to lay in bed until I feel a little stronger. It feels like I’m walking on sand and my brain can’t function properly. It takes me hours to come around and even then, I don’t fully come around.

Today, I woke up after a bad nights sleep and I struggled to stand up for longer than a minute. I felt faint, my legs felt like they were going to give way. My brain feels cloudy, my head and eyes hurt. My elbows and knees have pain shooting through them. I have pain in my lower back and sides, and so far, the dizziness and blurry vision is happening every time I stand up.

I’m beyond over the lovely weather because I’m struggling immensely to cope in it. Not everyone who complains about the weather is being a ‘Debbie Downer’, not everyone can cope in hot weather. And having limited resources to cool yourself down makes it harder. I honestly feel worse in England with the heat than I did abroad in Turkey.

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